a life to remember

How do you remember the times that you laugh and cry, the times that you argue, complain, fear, believe, hope, dream, love, and all of those
other aspects of life?  It is a moment, a simple memory, a fleeting thought, or a long pause?

We have been forced into the reality of life…a life to remember.  our son who has been battling neuroblastoma cancer, was freed from the 
battle on January 9th, 2009.  

Through this struggle we have appreciated having art as a language to express our feelings, thoughts, prayers; understood or not.
Below are poems in response to his life.
____________________________

why did you go?

i know you were strong and brave

our missing you is beyond pain and yet

you are so full of joy —

more than you even left with us,

which is hard to fathom,

excruciating to believe.

faith is unseen but true;

in weakness there is strength.

most don’t understand what you gave,

like the ONE…

your life LIVED not in vain,

but in such love, gifted gain,

welcomed pleasure

building life, home and eternity

with lions, a melting smile and more talent than

can be imagined.

Darin M. White

Copyright 1.22.09

  

Sculptures by Darin White and Drawing by Shannon White, copyright 2009
____________

 

We love you, Caden, One of Joy, our Little Warrior.

Capture the heart of the King.

“Drink the wind”,

Ride the baby lion!

Shine your light;

Twinkle bright so we can See you at night.

Fish, Build, Play, Run fast. 

Fly into the sunrise. 

Live your Dreams now and Forever.

We won’t forget the Treasure you are

Precious little guy who brought us such joy,

A gift we can never replace.

Go with God!

Be at peace with no more pain.

Be Free! 

Be one with the Savior.

Love forever in His open arms.

Eat from the Tree of Life

Fruit of Forgiveness.

Days without end…

 

Shannon N. White  
Copyright 2009

Designs From Life

So, as noted in our last post the reason we bailed out on the last gathering was that our amazing son Caden came down with childhood cancer.  Events like this tend to make one rethink everything about life.  I always prefer to play to my strengths rather than weaknesses (maybe this is a weakness?).  After trying to absorb the effects that this was going to have on our family’s life, I thought about if there was anything that I could do about this situation.  Realizing that I was completely and not just completely, but COMPLETELY unable to do anything about neuroblastoma in myself.  It was a not-so-nice-I-think-I-would-like-to-stop-the-world-and-get-off-for-a-while feeling.  So besides praying (which is very worthwhile, and highly recommended) I wanted to do something.  I decided that I would collect the paraphernalia from the events surrounding the cancer that Caden is fighting and produce a sculpture.  Shannon mentioned in the last post that I was working on a sculpture, but I forgot to post a sketch.  This is a rough sketch, but I think it embodies some of the ideas I am trying to address.  I am using the actual items that Caden sees daily, or when in the hospital.  I am basically making a history of the event in this way.  I am going to insert them (aesthetically of course) into clear resin and have them surround the object in the middle, which I am hoping will be the glass encapsulated preserved tumor.  I know, I know this may sound a little bizarre to some.  I think it is more about facing fear, and knowing that whatever we go through, no matter how painful, we can do it.  So ‘what doesn’t kill us makes us stronger’?  Maybe that is how life is.  The truth is in how we respond to what we are given, rather than what we are given.  I would love to say I haven’t had any fear in this whole ordeal, but that wouldn’t be true.  I appreciate the prayers of those who are praying, as we can feel them in a real way.  Caden has been wonderful throughout this whole situation.  His attitude is excellent and his smile is infectous.  We are so blessed to have him.  We are taking steps, small ones maybe, but steps to learning how to face our fears, to overcome them and realize that even though we don’t like it, we can learn from them and be better off even than before.

   

darin m. white 2007 Copyright

All Rights Reserved

Art & Life Update

Lately, we have been challenged with the juncture of our art and our life.  Our four year old son mr. c was recently diagnosed with an aggressive form of cancer, which has caused us to rearrange our artistic schedule and look at life with wonder.  This is the cause of our delay in the parabolic b.a.l.m gathering.  If you would like to find out more about his situation, we welcome you to visit his site.  We process each day in the hospital and at home and these unfamiliar and uninvited happenings in expressions of all sorts — words, emotions, prayers, sketches, questions of existence and connectedness.  D is collecting medical paraphenalia to make a sculpture about this ordeal.  He is also involved in helping others produce their work and running our business.  S is encouraged in her pursuit of affirming people even in or especially in seemingly hopeless situations through painting and otherwise.  For her, sometimes the art is a life of caring for our son and the family, enjoying the beauty of time together, seeing beauty in others, and other times it is creating a painting.  She is gathering the radiology scans right now, and doing artwork with little C as part of his therapy.  She appreciates clients’ understanding about time frames on portraits she is finishing. 

 

We have been affirmed in so many ways from so many people during this passage.  There is beauty to be found in and on the other side of the suffering because of the discoveries it brings.  About life, love and goodness.  While there is not as much time for us to sculpt and paint right now, we are seeing and creating artistically.   We are being formed by these experiences.

 

There is so much artwork around the CMH and RMH that has enriched our lives and given us comfort, that we wanted to document and share a few pieces.  Without it our days would seem a little bleaker, like a world without color or variety or hope.  We love the personalities which are expressed and the benefits we have received from them sharing their creativity with us.  We thank Children’s Mercy Hospital for investing and presenting this artwork, as well as the Ronald McDonald house and all of the respective donors.   We are constantly learning about the connections there are between creativity and healing.  Mr. C benefits from music therapy times in CMH and times making crafts of all sorts.  Engaging in creativity seems to comfort, soothe, mirror, occupy, divert, give expression to emotions and draw out hope and life.  It is a productive way of bringing a tangible beauty to raw pain and emotions and engage with others.  We are exploring these parts of artistic expression as well, personally, and with others.  We have also found a couple outlets for artists or people who want to use art for healing.

   

We want to connect with all of you and update those of you we have not spoken with personally about this situation.  We plan to have gatherings for artists, still, and want to hear from you about what you are working on, going through, excited about and how that influences your work as well.   Please contact us with ideas or about hosting the next gathering.   We appreciate those of you who linked Mr. C’s website on yours, so that more people will know the situation that he is in. 

  

PARABOLIC P ART Y invitation – An evening of artistic discovery

Please pass the parabolic art and conversation.  Come explore with us through childlike creativity this graceful, physical and abstract form found all around us.  We plan to play with the themes of art inspired by sound, sight, movement and light.   Bring yourselves, possibly a pertinent work, your creativity, and a bowl of food.  Art lovers are welcome.  We will provide noodles of all sorts to eat and to sculpt.  Contact us for details. 

click image for invite